Doctors Tell Their Baby That She Will Not Live Beyond Two Years. So, Dad Makes a Drug To Save Her Life

One father refused to believe that his daughter received a death sentence soon after she was born. He developed a drug that would fight the disease. His daughter survived. 

Megan Crowley was only 14 months old when she was diagnosed as having a rare condition called Pompe. Aileen and John Crowley, her parents, were informed by doctors that she would not be able to live beyond two years. 

This was not something they accepted. Doctors were surprised by Megan’s determination and will to live. and her father’s decision to create a new drug saved her life. John co-founded Novazyme Pharmaceuticals, and the company has done great work.

Doctors told a father that his baby would die. He created a drug to save her. Photo by Facebook/John F. Crowley| Photo: Facebook/John F. Crowley

John raised millions of dollars for his cause to get the award. DrugIt was up and running. The story of the family’s journey was also turned into a book. Starring in the film was Harrison Ford “Extraordinary Measures,”This document documented Crowley’s journey. 

Despite the extensive coverage, however, Megan’s views are not featured. This inspired her to start her blog. High Heeled Wheels. She uses the platform as a way to encourage others with disabilities. 

Megan said that she loves to prove people wrong. She has been underestimated many times throughout her life. : “No is not a word that I like to hear; it’s not in my vocabulary.”

The young woman graduated from high school and even obtained a double major in Film, Television, Theater, and American Studies. Megan is involved in many aspects of her university, such as the Make-A-Wish Club.

Megan is an inspiration to everyone who meets her; even her teachers say they learn from her. Megan can’t walk or breathe by herself, but she manages to get by. She stated that she does more than survive, and she is living her best life. 

She has many goals for the future. Not only does she want to work for the Muscular Dystrophy Association or the Make-A-Wish foundation, She also wants to be married. 

Megan also said that she hopes to have two children via surrogacy and two through adoption. She shared that her mission was to share the good news with others who have disabilities. Their condition is not fatal.

Megan : “You can live with disabilities, and that you can have a happy life.”Many people have found encouragement from this message. Online users frequently praise her for her determination, motivation, and perseverance.  

One user thanked their family for all they had done. The user : “Because of what this family did & how hard they have pushed for so many years, people like me, living with PompeHave hope for tomorrow!  

Megan is an amazing young woman who spreads positivity around the globe. She stated that she simply wants to continue to live a meaningful life filled with happiness, and so far, she is getting it right.  


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